I was excited. Nearly two years to the day after we received my daughter Anakha’s diagnosis, I came across another child with the same rare condition. Not a nameless statistic in a medical journal, but a real-life little girl, with…
By now, most of you know who Harvey Weinstein is. Or, more appropriately, who he was. But, do you know who Mayim Bialik is? She is the popular star of the TV sitcom “The Big Bang Theory”, former child star…
I waited a couple of weeks to gather my thoughts before I wrote this post. When Charlie Gard passed away, I felt numb relief. Living with uncertainty, constantly balancing on the precipice of life and death, is exhausting. Charlie’s parents…
Charlie Gard passed away on July 28, 2017. Click here to read Charlie Gard, an epilogue. My original post is shown below. By the time you read this post, Charlie Gard may have been taken off life-support. Pope Francis and…
The epidural was a game changer. It was the first time in 25 years that I did not feel the throbbing unrelenting pain of arthritis in my lower back. I wept with joy. It was the sweetest experience of my life, prior…
I have spent the past year waiting for my daughter to die. Findings and opinions were many. One in billions genetic mutation. Only three known cases in the world. She’ll be dead by fifteen months. Enjoy your time together. That…